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Tinnitus Frequently Answered Questions v2.7 |
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Abraham Shulman, M.D.
Lea & Febiger, 1991
ISBN 0-8121-1121-4
This is a several hundred page medical book covering all aspects of
tinnitus. It was used to confirm most of the medical statements in this
document, and is highly recommended.
Hallam, Richard. Tinnitus: Living with the ringing in your ears. Thorsons,
HarperCollins Publishers, 77-85 Fulham Palace Road, Hammersmith, London W6
8JB. A straightforward introduction to the nature of tinnitus distress and
what can be done about it.
Proceedings of the 1st International Tinnitus Seminar. The Journal of
Laryngology and Otology, Supplement 4, 1979.
Proceedings of the 2nd International Tinnitus Seminar. The Journal of
Laryngology and Otology, Supplement 9, 1984.
Proceedings of the 3rd International Tinnitus Seminar. Published by
Karlsruhe, Germany. 1987.
Proceedings of the 4th International Tinnitus Seminar. Published in France
(in English).
Tinnitus: Pathophysiology and Management. Edited by Masaaki Kitahara.
Igaku-Shoin, Tokyo, Japan.
Tinnitus. Ciba Foundation Symposium 85. 1981. Pitman Publishers, Lonson.
Tinnitus: Facts, Theories and Treatments. Dennis McFadden (ed.) Working
Group 89. National Research Council. National Academy Press, Washington,
DC, 1982.
Hazell, Jonathan. Tinnitus. Churchill-Livingstone, London, ISBN
#0-443-02156-2, 1987.
Vernon, Jack A. and Moller, A.R. Mechanisms of Tinnitus. Allyn & Bacon,
Needham Heights, MA. ISBN #0-205-14083-1, 1994.
TINNITUS - NEW HOPE FOR A CURE
by Paul Van Valkenburgh
Published by the author
Box 3611
Seal Beach, Ca 90740
ISBN 0-9617425-2-6
TO ORDER: Send $15.00 (ppd. in USA) to:
TINNITUS-N, Box 3611, Seal Beach, CA 90740
Home Page URL: http://members.aol.com/neurosense/tinnitus.html
An in-depth probe into the problem of tinnitus, which is informative and
thought provoking for the layman and professional.
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15) What online resources are available?
On the Internet, the Usenet newsgroup alt.support.tinnitus is the primary
discussion forum. Several other peripheral newsgroups exist where people at
risk for tinnitus may be found, as well as for various health disciplines
relevant to the treatment of tinnitus. See the Newsgroups: header of this
FAQ for details. (Be advised that this newsgroup has had obscene posting
and you may be quite repulsed by them! Please! Do not respond to them!)
People without direct access to Usenet newsgroups can still post messages
by e-mailing them to one of the many post-only e-mail->Usenet gateways such
as alt-support-tinnitus@cs.utexas.edu. When asking questions via this
method, make sure your message text asks people to respond via e-mail,
since these gateways will not allow you to read replies that are posted
back to Usenet.
Some additional resources:
http://www.prima.ruhr.de/projekte/tinnitus
A German language Web page about tinnitus.
gopher://phil.utmb.edu/00/UTMB%20ENT%20Grand%20Rounds/TINNITUS_CME
A University of Texas paper on the causes and treatments of tinnitus.
http://www.bme.jhu.edu/labs/chb
The Center for Hearing and Balance at Johns Hopkins University. The
Center includes researchers, teachers, clinicians, and others in the
Hopkins medical community. The goal of the Center is to perform basic
and clinical research, train young basic and clinical investigators,
and disseminate research results and relevant information to the
medical community and the general public. Research is centered on
auditory (hearing) and vestibular (balance) function in normal
subjects and in patients with hearing and balance disorders, and on
rehabilitation.
http://www.boystown.org/hhirr/tinnitis.html
This is a link to the Boys Town National Research Hospital's page on
Tinnitus (despite the spelling in the URL). [It's not incredibly
informative, but the page above it has lots of good hearing
information.]
http://www.teleport.com/~veda
The Vestibular Disorders Association (VEDA) is a nonprofit
organization that exists to provide information and support to people
with inner ear disorders such as labyrinthitis, BPPV, and Meniere's
disease.
http://www.ohsu.edu/ohrc/
The Oregon Hearing Research Center web server is a truly must-see
server, with plenty of local OHRC information as well as pointers to
other online information.
http://www.aro.org/showcase/aro/
The Association for Research in Otolaryngology has hardcore research
abstracts on many things, including cochlear hair cell regeneration.
http://kuni.nidcd.nih.gov/
Learn about the basic research being done at NIDCD on cochlear hair
cells.
http://lab9924.wustl.edu/home.htm
More basic research being done at the Cochlear Fluids Research
Laboratory. A good intro to inner ear anatomy is available.
http://lab9924.wustl.edu/men.htm
A clinically orientated web page for patients with Meniere's disease
http.//www.hearnet.com/index.html
HEARNET: Rock&Rollers advice to Rock&Rollers et. al. about the harmful
effects of loud music.
http://members.aol.com/neurosense/tinnitus.html
About a book called: TINNITUS - NEW HOPE FOR A CURE by Paul Van
Valkenburgh
http://www.visi.com/~minuet/hearing/hyperacusis/index.html
The Hyperacusis Site: An online page that has information about
hyperacusis and what can be done to relieve and/or cope with it.
http://www.cabotsafety.com/tech/earlog
Includes a series of 20 articles on the study of hearing protection
http://www.dejanews.com/ Archives
of alt.support.tinnitus since 01/01/96. Also does word searches in
a.s.t and other newsgroups.
http://www.hollys.com/success-dynamics/
Information about Tinnitus and the treatment of Tinnitus by Hypnosis.
http://www.teleport.com/~ata
Home Page Site for the "American Tinnitus Association".
http://www.ucl.ac.uk/~rmjg101/tinnitus1.html
"Tinnitus Retraining Therapy"- ..."tinnitus management in our clinics
is a result of retraining and relearning....
http://www.ohsu.edu/ohrc-otda/
Oregon Tinnitus Data Archive- A reference source for those desiring
quantitative information about clinically-significant tinnitus.
http://www.cdc.gov/niosh/noise2a.html
NIOSH- Occupational Noise and Hearing Conservation page. Provides a
basis for a recommended standard to reduce permanent noise damage.
http://www.visi.com/~minuet/hearing/
Hearing Exchange Online. Web pointers to just about everything you
wanted to know about hearing.
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16) What can I do when all else fails?
Here is one sufferer's advice:
What caused my tinnitus? Everyone asks that question.
For some of us, there was an illness, injury, or incident that
seems directly related to the onset of tinnitus. I'm not sure how
valuable being able to answer this question is, but at least it
seems to be answered.
For others, the onset is sudden, but for no obvious reason. For
these people, it may be frustrating not knowing "why" but I'm not
sure of the value of dwelling on this question.
For others like myself, the onset was gradual, over the years.
Then, about a year ago, the pace of the onset increased to where
I am now aware 100% of the time that it's there. If I'm active, I
don't notice it. But if there's a lull in my mental or physical
activity or if I think about it, it's there.
The point I want to make with this post is: Just as "Sh-t
Happens", I'm afraid "Tinnitus Happens", too. And we're the
victims, albeit to widely varying degrees.
Unless it can provide a path towards treatment (and only your
doctor can determine this), I don't think it is useful to dwell
heavily on the "why".
In my case, I fired shotguns with no ear protection when I was a
kid & I listened to some too-loud music a few times. But that's
all irrelevant now.
I've got tinnitus. At present, there's no known treatment for me.
So, here's what I'm doing about it:
* I accept that I have tinnitus and I've dispensed with "why".
* I recognize that it is my problem, not the problem of my
friends, family, & business associates. I don't complain
about it to anyone.
* If, because of my tinnitus, I need to ask someone to repeat
themselves, I simply ask. No apologies, no explanations.
* I will monitor my need to ask for repeats. If I have an
underlying hearing loss, I may need a hearing aid. As
unattractive to me as getting a hearing aid may be, it is my
responsibility to have my hearing evaluated & take
appropriate measures. It is not the responsibility of the
people around me to act as hearing aids.
* I will attempt the various herbal remedies, giving them
enough time to see if they're effective. However, for my own
sanity, I will accept my present condition as the "zero base
line". If a remedy helps, that's a "plus". If it doesn't, I
remain at the baseline. In other words, failure to be helped
by a possible treatment is not a negative. I will not allow
disappointment or despair at a treatment failure to get me
down.
* Whatever the seriousness of my tinnitus, I will remember
that others have it much worse & still others have just been
diagnosed. These are the people who need my support and
encouragement. I will offer it when I meet them and by
posting to this newsgroup. I realize that by helping others,
I am also helping me.
Comments always welcome.
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17) Where did the medical advice in this FAQ come from?
With few exceptions, none of the contributors to this FAQ are physicians.
Contributor advice that cannot be confirmed in tinnitus books written by
M.D.s has been labelled anecdotal. Use any of this information, anecdotal
or not, strictly at your own risk.
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18) What clinics or physicians can I turn to for real medical advice?
The following clinics or physicians all specialize in the treatment of
tinnitus and related disorders.
United States
House Ear Institute
2100 W. 3rd St.
Los Angeles, CA 90057
USA
+1 213 483-9930 voice
+1 213 483-5706 TDD
The Tinnitus Clinic
Oregon Hearing Research Center
Oregon Health Sciences University
3181 SW Sam Jackson Park Road
Portland, OR 97201
+1 503 494-7954
Dr. Jack Vernon has been involved in tinnitus research and treatment since
1978. The OHRC Tinnitus Clinic sees patients from all over the world. Our
main emphasis here at the OHRC is on tinnitus masking. The technique of
masking was developed here. We have also done some drug studies for
tinnitus relief, the Xanax study being one of them. Be sure to visit the
OHRC web server at http://www.ohsu.edu/~ohrc/ohrc.html.
University of Maryland Tinnitus Center
419 W. Redwood Center
Baltimore, MD 21201
+1 410 328-6866
Unfortunately, the waiting list for an appointment (which is very
comprehensive and I believe takes 2 days) is currently about 1.5 years.
*****[more references needed]*****
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19) Who are the contributors to this FAQ?
Unless otherwise requested, all contributors will be credited here.
Lee Leggore nomader@eskimo.com (FAQ Maintainer)
Richard Alpert alpert@cs.bu.edu
Barbara Bixby markb@cccd.edu
Julie Bixby markb@cccd.edu
Mark Bixby markb@cccd.edu
Karl F. Bloss blosskf@ttown.apci.com
Paul Braunbehrens Bakalite@bakalite.com
Sabra Broock sbroock@tmjfound.com
Pete Brooks Peter_Brooks@sj.hp.com
W. Keith Brummet wkb@cblph.att.com
Angelo Campanella acampane@postbox.acs.ohio-state.edu
David Charlap david@porsche.visix.com
Jim Chinnis jchinnis@interramp.com
Erik Christensen erchrist@char.vnet.net
Michael Claes claes@bbt.com
Michael L. Connolly connolly@netcom.com
Ken Cornell cordley@ismi.net
Thomas A. Creedon creedont@ohsu.edu
Scott Dayman scott@ida.jpl.nasa.gov
Bob Dubin, DC drdubin@aol.com
Scott Dunbar dunbar@abacus.colorado.edu
Steven Wm. Fowkes fowkes@ceri.win.net
Louis Goossens goossens@natlab.research.philips.com
Steve Gotthardt steveg@up.edu
Doug Gwyn gwyn@arl.mil
Jamie Hanrahan jeh@cmkrnl.com
George Harvey gwh@panpacific.reno.nv.us
Dr. Kevin Hogan meta@ix.netcom.com
Kuni H. Iwasa kiwasa@helix.nih.gov
Jean Jasinski jean@swttools.fc.hp.com
Norman F. Johnson njohnson@nosc.mil
Douglas R. Jones djones@iex.com
Martin Kaiser makaiser@alma.student.uni-kl.de
Patrick Koehne koehne@oslo.informatik.uni-dortmund.de
Sacha Krakowiak Sacha.Krakowiak@imag.fr
Laurie Kramer laurie@gdb.org
Richard Landesman rlandesm@moose.uvm.edu
Jill Lilly lillyj@ohsu.edu
Darlene Long-Thompson, Rn darlene@special-hearts.org
Colleen Lynch clynch@random.ucs.mun.ca
Allan MacDonald almacdon@fox.nstn.ca
Boyd Martin boydroid@netcom.com
Betty Martini betty@pd.org
Andy Matthiesen AndyMatt@ix.netcom.com
Rob McCaleb rmccaleb@hrf.org
Kevin McEvoy mcevoy_k_t@bt-web.bt.co.uk
Bernard H. Meyer 102630.1451@compuserve
Paul Murphy pmurphy@carbon.denver.colorado.edu
Daniel A. Norton danorton@chsw.win.net
John Setel O'Donnell jod@equator.com
Louise M. Peelle lpeelle@umich.edu
Susan PF susanPF@aol.com
Mark A. Pitcher sols7520@mach1.wlu.ca
David Powner dave@filtermx.demon.co.uk
Derek L. Rintel N/A
Dallas Roark roark@kuhub.cc.ukans.edu
E. C. Roberts ecr@tomlinson.com
Joe Schall jschall@moose.uvm.edu
Dan Segal Sigeroo@aol.com
Mark Sharp mvsharp@tenet.edu
Chandra Shekhar chandy@sophia.inria.fr
Jeff Sirianni sirianni@uts.cc.utexas.edu
Jeff Slavitz jslavitz@netcom.com
Lori Snidow lnsnidow@ufcc.ufl.edu
Kurt Strain kurts@sr.hp.com
Manfred Thuering manfred@mpi.unibe.ch
Jack Trainor jdt@well.sf.ca.us
Jerry Underwood veda@teleport.com
Dr. Jack Vernon vernonj@ohsu.edu
Peter Wanner wanner@pewa.rhein-main.de
Allen Watson allen_watson@quickmail.apple.com
Mike Watterson watterson@stsci.edu
Alan Wendt alan@ezlink.com
Tony Wolf tony@howl.demon.co.uk
Steve Zimmerman stevezim@crl.com
--
Mark Bixby E-mail: markb@cccd.edu
Coast Community College Dist. Web: http://www.cccd.edu/~markb/
District Information Services 1370 Adams Ave, Costa Mesa, CA, USA 92626-5429
Technical Support +1 714 438-4647
"You can tune a file system, but you can't tune a fish." - tunefs(1M)
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